Thanks to advances in therapies, hemophilia have experienced in recent years a real improvement in their living conditions.

A 10 000. This is the number of people who are born with hemophilia worldwide. Inherited genetic disease, hemophilia is a problem of blood resulting in a difficulty of blood to clot due to the inadequacy or absence of a clotting factor. Unlike other bleeding disorders, hemophilia affects almost exclusively boys, while girls, conductive, transmit the disease. People with bleeding longer than normal, but they do not bleed more profusely. External bleeding, if they are impressive for the environment, are not the most serious. Internal bleeding or bruising may by important threat against the patient’s life. When repeated in the joints, they cause significant pain, limited movement and can even lead to disability.

Preventive measures necessary

In an emergency, an injection of clotting factor, obtained either from plasma or by genetic recombination, will limit the bleeding. But medical care is only one aspect of maintaining health and prevention is critical. People with hemophilia should exercise caution at all times to avoid injury that could be fatal. Hemophiliacs must necessarily take up a sport adapted (swimming, running, golf, tennis) and if necessary to use an adequate therapy in order to have strong muscles and motor function effective. In addition, they must watch their weight to avoid influencing their joints, especially if they suffer from arthritis.


Natural healthcare today

“The advanced therapies have allowed hemophiliacs to live longer and be healthier,” says Philippe de Moerloose, chief of hematology and head of unit for hemostasis of University Hospitals of Geneva (HUG) . Indeed, today, life expectancy of a severe hemophiliac is similar to that of the general population, while maintaining a high quality of life. This is certainly the case in developed countries, as treatment for severe hemophilia treated well costs about 100,000 Swiss francs per year.

Currently most severe hemophiliacs are treated in childhood by prophylaxis. That is to say, two to three times a week, they receive an injection and as a preventive coagulation factor. The results of this treatment are spectacular. This preventive treatment will be further improved with new products that will stay longer in the blood, which will allow people with hemophilia to do only a few injections per month. Reached adulthood, hemophiliacs treated in this manner have less bleeding, live almost normally and their joints are in good condition.

What are the signs of hemophilia?

* A hemophiliac has often extensive bruising.
* Hemorrhages occur in the muscles and joints.
* Internal bleeding can occur spontaneously and suddenly, without reason.
* After an accident, a cut or surgical procedure, a person with hemophilia bleeds for long periods.